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Useful organisations for end of life advice
When you are diagnosed with a life limiting condition it’s normal to want to find out as much as possible about your disease, your care options and the support available. The internet can be a wonderful source of knowledge, however there is a vast amount of information and it can be difficult to differentiate between the reliable and the risky.
Your GP and district nurse should be your first port of call, they will know of local support groups and can provide information leaflets and refer you to a specialist palliative care team if necessary.
There are many excellent charities and websites that can provide safe information, support and guidance.
Macmillan have an website with lots of information about cancer and living with an incurable illness. They also have a network of specialist professionals that can provide support from initial diagnosis through to your final days.
Dying Matters is a coalition of people with the goal of helping people talk more openly about death, bereavement and making plans for the end of life.
Cruse are a charity that specifically supports the bereaved. They have a national helpline and a number of trained volunteers working across the country to help grieving individuals.
In this country most people will receive their health care from the National Health Service. They also have an excellent health information resource with a special area dealing specifically with palliative care and the end of life.
Marie Curie have a website and leaflets with loads of great information. They also have a national network of specialist nurses working night and day to provide hands-on nursing care as well as offering emotional support and a friendly face.
The Alzheimer’s Society supports anyone affected by dementia. They provide information, support, fund research and raise awareness.
Healthtalk is a free online source of information. On here you can read or watch films about people’s individual experiences of living with a terminal illness.
Hospice UK is a charity for hospice care. They promote, support and provide hospice care across the country.
The MND association have a mission to enable everybody living with the disease to receive the best care, achieve the highest possible quality of life and to die with dignity.
The MS Society provides information and support about multiple sclerosis. It also funds important research and fights for change.
The NCPC is the umbrella charity for palliative care in England, Wales and Northern Ireland. They work to improve end of life care for everyone.
Sue Ryder provide neurological and hospice care for people with serious neurological conditions. As well as expert medical care, they also offer emotional support, practical help and information.
Carers UK aims to make life better for carers. They provide support and information for the many millions of unpaid carers across the UK.
Find out more about the range of palliative care services that we offer throughout London.